HYBRID EVENT: You can participate in person at London, UK or Virtually from your home or work.

International Conference On Orphan Drugs and Rare Diseases

August 21-23, 2023

August 21 -23, 2023 | London, UK

Transforming care for rare diseases

Transforming care for rare diseases

Rare diseases are diseases with a very low prevalence rate. However, in different nations, the term "low prevalence" is defined differently. Furthermore, in many countries, the term "rare disease" is defined by the total number of patients rather than the actual prevalence of the disease (i.e., proportion of the population being affected). Patients with rare diseases confront particular problems, beginning with prolonged diagnostic delays due to the fact that many health care practitioners have limited experience identifying rare diseases and may overlook the early symptoms. Once a diagnosis has been made, the following step is to find a qualified medical professional who can treat the ailment. Furthermore, there is frequently no cure available. Finding enough information on the disease, its likely progression, viable treatments, ongoing clinical trials, and so on is another big issue for caregivers. A greater understanding of the entire management of patients with rare diseases who are treated solely outside of primary care might benefit their care.

  • Epidemiological Prevalence
  • Economic Cost of The Disease
  • Health Technology Assessment
Committee Members
Speaker at Orphan Drugs and Rare Diseases 2023 -  Daniel Scherman

Daniel Scherman

Fondation Maladies Rares, France
Speaker at Orphan Drugs and Rare Diseases 2023 -  Jiao Fuyong

Jiao Fuyong

Children’s Hospital of Shaanxi Provincial People’s Hospital, China
Speaker at Orphan Drugs and Rare Diseases 2023 -  Victor Shengkan jin

Victor Shengkan jin

Rutgers University, United States
Orphan Drugs 2023 Speakers
Speaker at Orphan Drugs and Rare Diseases 2023 - Candida Fratazzi

Candida Fratazzi

BBCR Consulting - Massachusetts, United States
Speaker at Orphan Drugs and Rare Diseases 2023 - Philip Bielefeld

Philip Bielefeld

Avignon Hospital, France
Speaker at Orphan Drugs and Rare Diseases 2023 - Harsha Rajasimha

Harsha Rajasimha

Jeeva Informatics Solutions Inc, United States

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