HYBRID EVENT: You can participate in person at London, UK or Virtually from your home or work.

International Conference On Orphan Drugs and Rare Diseases

August 21-23, 2023

August 21 -23, 2023 | London, UK

Access and Pricing

Access and Pricing

Pharmaceutical companies have been increasingly focusing on developing treatments for rare diseases in recent years. This is largely due to technological advancements that make identifying the genetic causes of rare diseases easier. Because of their high prices, orphan medications have a lot of potential to generate income. By 2022, the global orphan medication industry is expected to have grown to $209 billion, accounting for 21.4 percent of all branded prescription drug sales. The high pricing connected with some orphan drugs have become a point of contention as the number of approved orphan drugs has grown. The high expense of drug development and recouping these costs by a smaller patient pool are the most common reasons for orphan medicine prices. We can't use cost-based pricing strategies unless we fully grasp the costs of orphan medicine research. If the patient population is limited enough, orphan medications with relatively low research costs may nonetheless require very high pricing to recoup those expenditures. Even if a more accurate cost of medication development at the drug level becomes accessible, the question of how much profit should be allowed above the cost of drug development remains. There is still a lot of work to be done in this area to better understand how to reward innovation while keeping drug expenditures in check.

  • Cost Based Pricing
  • Establishing A Reasonable Price
  • Reimbursed Price
  • Patient Access
Committee Members
Speaker at Orphan Drugs and Rare Diseases 2023 -  Daniel Scherman

Daniel Scherman

Fondation Maladies Rares, France
Speaker at Orphan Drugs and Rare Diseases 2023 -  Jiao Fuyong

Jiao Fuyong

Children’s Hospital of Shaanxi Provincial People’s Hospital, China
Speaker at Orphan Drugs and Rare Diseases 2023 -  Victor Shengkan jin

Victor Shengkan jin

Rutgers University, United States
Orphan Drugs 2023 Speakers
Speaker at Orphan Drugs and Rare Diseases 2023 - Candida Fratazzi

Candida Fratazzi

BBCR Consulting - Massachusetts, United States
Speaker at Orphan Drugs and Rare Diseases 2023 - Philip Bielefeld

Philip Bielefeld

Avignon Hospital, France
Speaker at Orphan Drugs and Rare Diseases 2023 - Harsha Rajasimha

Harsha Rajasimha

Jeeva Informatics Solutions Inc, United States

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