International Conference On Orphan Drugs and Rare Diseases

August 17-19, 2023

August 17 -19, 2023 | Online Event
Orphan Drugs 2023

Vicki Ratner

Speaker at Orphan Drugs and Rare Diseases 2023 - Vicki Ratner
ESSIC - International Society for the Study of BPS, United States
Title : Interstitial cystitis/bladder pain syndrome - A rare disease?


Interstitial cystitis/bladder pain syndrome (IC/PBS) was once thought to be a rare disease as well as a psychosomatic disorder in women.  As a result, the disease went undiagnosed for hundreds of years.  IC/BPS is a condition of the bladder that can cause severe pain, urinary urgency and frequency of the bladder.  However, laboratories report urine cultures as negative and there does not appear to be an infection.  It wasn’t until 1987 that IC/BPS was considered a medical condition highlighted by the first NIH (National Institutes of Health) research conference on the subject. This recognition was triggered by the tremendous efforts on the part of a patient advocacy group, the Interstitial Cystitis Association (ICA), formed in 1984. Even today, female patients often consult multiple urologists before getting the proper diagnosis. Unfortunately, despite 35 years of research by an excellent cadre of researchers, we are no further along in categorizing the disease, or finding a uniformly effective treatment.


Vicki Ratner, M.D. completed her undergraduate studies at Columbia University in New York City (NYC), medical school at Upstate Medical Center in Syracuse, New York, and completed her orthopedic surgery residency at Montefiore and Albert Einstein School of Medicine in NYC.  She is Founder and President Emeritus of the Interstitial Cystitis Association, serving from 1984-2008.  She now works with ESSIC (International Society for the study of Painful Bladder Syndrome) as co-chair of the Patient Advocacy Committee.