Biography:
Audrey Gordon is the President and Executive Director of The Progeria Research Foundation (PRF), an organization dedicated to finding, treating and curing children with Progeria—an ultra-rare, genetic, “rapid-aging” disease. In response to the Progeria diagnosis of her nephew Sam Berns and the complete lack of resources available to help these children, Ms. Gordon co-founded PRF with Sam’s parents in 1999. PRF's team has made phenomenal progress, taking the field of Progeria research from scientific obscurity to global prominence, discovering one treatment that is extending lives, and developing gene therapies that will one day lead to a cure.
Title : About progeria - The ultra-rare, fatal "rapid-aging" disease - And how you can help