This is to inform that due to some circumstances beyond the organizer control, “2nd International Conference on Orphan Drugs and Rare Diseases” (ORPHAN DRUGS 2025) scheduled during March 13-15, 2025 in Rome, Italy has been postponed. The updated dates and venue will be displayed shortly.
Your registration can be transferred to the next edition, if you have already confirmed your participation at the event.
For further details, please contact us at orphan-drugs@magnusconference.com or call + 1 (702) 988 2320.
Daniel Wainstock is a Rare Disease Patient Advocate and Health Law Researcher at the Pontifical Catholic University of Rio de Janeiro (PUC-Rio), in Brazil. He advises lawmakers and policymakers in Latin American countries on Rare Disease-related policies. He has also worked as a Volunteer at Rare Diseases International (RDI), on advocacy efforts for the WHO Resolution on Rare Diseases.
Title : Advancing rare disease policy in latin America: A call to action